Bracknell and District Branch

Bracknell and District Branch

We have provided information and links to non-commercial organisations that offer independent information, advice or services which might be useful. To find out more click on a title or the + symbol to reveal more details. Links to Other Interesting or Useful Websites. Please note that the Bracknell Parkinsons Organisation are not responsible for content which may be found on web sites linked below. If you do find objectionable material or wish to suggest other sites which may be of interest to others please use the Contact Us menu option to advise.

AbilityNet

AbilityNet are a charity that provide a range of free services for disabled people, their family and friends, their employers and other people who care for them.
Call our free Helpline on 0800 048 7642 to ask anything about how computers can be adapted to meet the needs of disabled people.
Our network of IT Can Help volunteers visit disabled people in their home to help with everyday IT needs. 

Adventure Sponsorship

If you fancy doing something challenging whilst raising money for Parkinson’s you might like to see the options available on this web page: http://www.parkinsons.org.uk/events

Age UK Berkshire

Web: www.ageuk.org.uk/berkshire/

Age Concern Berkshire is an independent charity working across the county to promote independent living to over-50s.  We provide information and advice as well as activities, wellbeing and care to over 58,000 people each year.

Book Swap

If you have books which you no longer need you can arrange to exchange books via the Read It Swap It web site. You (the buyer) only pay the postage.

http://www.readitswapit.co.uk/

Carers UK

www.carersuk.org/upfront

Upfront, from Carers UK, is the first online guide of its kind to give tailored financial and practical information to those who are new to caring. As well as the practical and financial support, it provides information to help carers manage the impact of caring on health and relationships.

The E-Gym Project - Exercises For Parkinson's

Taking regular exercise is a highly recommended option for sufferers of Parkinson’s. The E-Gym Project provides a set of animated exercises which may be useful.

http://www.parkinson-italia.info/e_gym_uk/

Some exercises may prove more beneficial to you than others – if you are unsure please check with your physiotherapist or doctor. It is recommended that you have someone with you the first few times you attempt new exercises which could potentially lead to you becoming unbalanced or falling.

Free Cinema Tickets

If you have Parkinson’s you can obtain a card which entitles anyone accompanying you to the cinema  – free of charge. To submit an application please visit the Cinema Exhibitors’ Association web site.

http://ceacard.co.uk/

Going Into Hospital

Information designed to help you if you need to spend time in hospital can be found on the Parkinson UK website at

http://www.parkinsons.org.uk/content/going-hospital-when-you-have-parkin…

Government Care and Support

Web:  http://www.gov.uk/careandsupport  

Care and support’ is the term used to describe the help some adults need to live as well as possible with any illness or disability they may have. Check the website to see what is changing

Guide To Benefits

The DirectGov web site lists all of the different benefits and allowances which are available to disabled people. In particular the following publications may be of interest:

Financial Support For Disabled People:  http://www.direct.gov.uk/en/DisabledPeople/FinancialSupport

Benefits Available For Carers: http://www.direct.gov.uk/en/CaringForSomeone/MoneyMatters/DG_10037637

Help in Bereavement

Web: http://www.help-in-bereavement.org.uk

Help in Bereavement is a registered charity. It has been running since 1979, supporting people of all ages when they are struggling with the loss of a loved one. The trained Visitors usually meet people in their own home for about an hour each visit and for as long as is needed. It is a free service. If anyone would like more information on any of Help in Bereavement’s services please go onto the website:

Oxford Parkinson's Disease Centre

The OPDC are working on a project which aims to find diagnostic tests which can identify Parkinson’s at an early stage in the life cycle of the illness. Currently diagnosis comes after the patient is exhibiting classical symptoms, by which time damage to the patient’s internal system is already well advanced and probably too late to give medication a chance to either prevent further aggressive deterioration or hamper its progress.

http://opdc.medsci.ox.ac.uk/

You can find out if there are any studies currently looking for volunteers by checking the link below:

https://www.opdc.ox.ac.uk/take-part

NICE Guidance

National Institute for Health and Clinical Excellence provide a range of guidance relating to Parkinson’s.

https://pathways.nice.org.uk/pathways/parkinsons-disease

Parkinson's Alert Card

One way to let people know that you have Parkinson’s is to carry a Parkinson’s alert card. These are available free of charge and can be useful in case of emergency or when having difficulty with movement or communication.

Two versions are available, one is suitable for people who have hearing difficulties. 

https://shop.parkinsons.org.uk/products/parkinson-s-alert-card

Parkinson's Medication Card

This is a card which you can carry around listing the medications which you need. Click here to see details of how to order.

Parkinson's Research

Find out about the latest research into Parkinson’s.

https://www.parkinsons.org.uk/research

 

Parkinson’s UK

Web: www.parkinsons.org.uk

The main website for Parkinson’s UK.

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